Overview

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. This book examines what we know about the needs of these children and their families, the extent to which such needs are - and are not - being met, and what can be done to provide more competent, compassionate, and consistent care.

Full Product Details

Author:   Institute of Medicine ,  Board on Health Sciences Policy ,  Committee on Palliative and End-of-Life Care for Children and Their Families ,  Richard E. Behrman
Publisher:   National Academies Press
Imprint:   National Academies Press
Dimensions:   Width: 15.20cm , Height: 3.60cm , Length: 22.90cm
Weight:   0.925kg
ISBN:  

9780309084376

ISBN 10:   0309084377
Pages:   712
Publication Date:   09 February 2003
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Hardback
Publisher's Status:   Active
Availability:   Out of stock  
The supplier is temporarily out of stock of this item. It will be ordered for you on backorder and shipped when it becomes available.

Table of Contents

1 Front Matter; 2 Summary; 3 1. Introduction; 4 2. Patterns of Childhood Death in America; 5 3. Pathways to a Child; 6 4. Communication, Goal Setting, and Care Planning; 7 5. Care and Caring From Diagnosis Through Death and Bereavement; 8 6. Providing, Organizing, and Improving Care; 9 7. Financing of Palliative and End-of-Life Care for Children and Their Families; 10 8. Ethical and Legal Issues; 11 9. Educating Health Care Professionals; 12 10. Directions for Research; 13 References; 14 Appendix A: Study Origins and Activities; 15 Appendix B: Prognostication Scores; 16 Appendix C: Assessing Health-Related Quality in End-of-Life Care for Children and Adolescents; 17 Appendix D: Cultural Dimensions of Care At Life; 18 Appendix E: Bereavement Experiences After the Death of a Child; 19 Appendix F: End-of-Life Care in Emergency Medical Services for Children; 20 Appendix G: Education in Pediatric Palliative Care; 21 Appendix H: Progress in Pediatric Palliative Care in New York State--A Demonstration Project; 22 Appendix I: Committee Biographical Statements; 23 Index

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Author Information

Marilyn J. Field and Richard E. Behrman, Editors, Committee on Palliative and End-of-Life Care for Children and Their Families

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