Overview

In the quiet suburbs of Kansas City, Missouri, a family's journey through the labyrinth of medical mysteries began. This is a story of resilience, perseverance, and the relentless pursuit of answers. It is a tale of five brothers, all but one diagnosed with Normal Pressure Hydrocephalus (NPH). Their father was the first to be diagnosed in l980, and over the years, the same fate befell his sons. The narrative unfolds with the history of the family, detailing the upbringing of the brothers in a quiet neighborhood right off the state line between Kansas and Missouri. Their father's early diagnosis of NPH set the stage for a series of medical challenges that would span decades. Each brothers tell their own unique story, some through the retelling of their experiences through their wives and daughter, facing their own battle with the condition. This book aims to shed light on the misdiagnosis of NPH and to share personal family stories to help others recognize the condition. It delves into the genetic component of NPH, citing studies from various countries and the hereditary links that have been discovered so far. The author emphasizes the importance of being an advocate for patients, understanding CT and MRI scans, and seeking multiple opinions when symptoms of NPH are present. Through the lens of this family's experience, readers will gain insight into the emotional and physical toll of caring for loved ones with NPH. The book serves as a roadmap for frustrated caregivers, offering hope and guidance in the face of an elusive diagnosis. It is a testament to the strength of family bonds and the power of persistence in the quest for answers. Enjoy the ride!

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