Overview

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to ehlers-danlos syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on ehlers-danlos syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Ehlers-Danlos Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Ehlers-Danlos Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Ehlers-Danlos Syndrome; Chapter 5. Books on Ehlers-Danlos Syndrome; Chapter 6. Periodicals and News on Ehlers-Danlos Syndrome; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; EHLERS-DANLOS SYNDROME GLOSSARY; INDEX. Related topics include: E-D Syndrome, EDS.

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