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9780578471266

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A remarkable book that captures the astonishing beauty of her two grandchildren and the deep pain of their loss. As a grandmother and parent, the author is open about the particular challenges of her role, and reflects on her own vulnerabilities and fears. Her admiration for her children shines through, and it is a blessing that she leaves the reader with a sense that there is nothing to fear from the moment of death. --JULIA OGILVY, author of Turning Points and Women in Waiting Gay Lord, grandmother, has written a stunningly honest, deeply intimate memoir of a family facing every parent's worst nightmare twice--with unwavering love and courage. Heart wrenching and inspirational, her book chronicles their journey into the devastating darkness of infantile Tay-Sachs disease as it steals the lives of two young children. Their brave families find a way to embrace suffering and make peace with it, discovering gifts of joy along the way. This is a powerful, deathbe-not-proud book that does not shy away from tough questions, doubts, and end-of-life decisions. It explores deep grief and loss and yet ends with gratitude. Unbroken by death, this is a family with much to teach us about how to live. --JOAN KAVANAUGH, author of For the Living of these Days: Prayers for a Troubled World

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