The Governance of Genetic Information: Who Decides?

Author:   Heather Widdows (University of Birmingham) ,  Caroline Mullen (University of Leeds)
Publisher:   Cambridge University Press
Volume:   9
ISBN:  

9781107625426


Pages:   248
Publication Date:   05 December 2013
Format:   Paperback
Availability:   Manufactured on demand   Availability explained
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The Governance of Genetic Information: Who Decides?


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Author:   Heather Widdows (University of Birmingham) ,  Caroline Mullen (University of Leeds)
Publisher:   Cambridge University Press
Imprint:   Cambridge University Press
Volume:   9
Dimensions:   Width: 15.20cm , Height: 1.30cm , Length: 22.90cm
Weight:   0.340kg
ISBN:  

9781107625426


ISBN 10:   1107625424
Pages:   248
Publication Date:   05 December 2013
Audience:   Professional and scholarly ,  Professional and scholarly ,  Professional & Vocational ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Manufactured on demand   Availability explained
We will order this item for you from a manufactured on demand supplier.

Table of Contents

Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; 2. Me, myself, I: against narcissism in the governance of genetic information Søren Holm; 3. Decisions, consent and expectations of the individual Caroline Mullen; Section II. Ethical Frameworks of Governance: 4. Constructing communal models of governance: collectives of individuals or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and stewardship: beyond consent Roger Brownsword; 6. Who decides what? Relational ethics, genetics and well-being Sarah Wilson; Section III. Redesigning Governance: 7. Involving publics in biobank governance: moving beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8. Genetic information and public opinion Andrew Edgar; 9. Harmonisation and standardisation in ethics and governance: Conceptual and practical challenges Ruth Chadwick and Heather Strange.

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Author Information

Dr Heather Widdows is a Senior Lecturer in the Department of Philosophy at the University of Birmingham, where she teaches moral philosophy and bioethics. Dr Caroline Mullen is a research officer at the Centre for European Law and Legal Studies, School of Law, University of Leeds.

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