Overview

"John Lynch was a promising athlete, but at age eleven was struck by a crippling illness. He was diagnosed with juvenile rheumatoid arthritis (JRA), a disease that affects 300,000 children, making them unable to live full-functioning, pain-free lives. Children with JRA are called Katfish, a name derived from Kids and Teens' Families Investing Support and Hope. John continued to seek new treatments, but not until age fifty-three was he given the ""miracle drug"" that enabled him to sustain a thirty-year legal practice. During that time he dedicated his life to helping others who suffered from JRA, and became a much-honored advocate for easing their distress. In addition to chronicling John's journey from victim to advocate, Katfish includes the stories of children fighting through pain to carve out successful lives. These tales will give hope and inspiration to those afflicted with chronic illness and to anyone who must overcome a seemingly insurmountable obstacle in order to lead a happy and meaningful life. John P. Lynch has had rheumatoid arthritis since 1959. In 2004, he formed The Rheumatoid Arthritis Project, a nonprofit organization whose mission is to help find the cure for JRA. He has been a longtime volunteer advocate for the Great West Region of the Arthritis Foundation. The region honored him with its 2002 Advocacy Award and 2009 Inspirational Leadership Award. John has worked tirelessly for the appropriation of public resources to prevent, control, and cure this chronic, painful, and disabling condition."

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9780996707718

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I have seen firsthand John's bravery and determination; he has dedicated his life to energizing our political leaders to help the millions who suffer. John's memoir is a story of how one man can stand against the odds and make a difference. It's an inspiration that will touch your heart. -Congresswoman Cathy McMorris Rodgers John has been a tireless advocate for people with arthritis. He encourages all of us to support the fight for a better life for the more than 50 million Americans who live daily with the effects of arthritis. John's deeply personal perspective sheds light on the impact of the disease and on how a single individual can change the way others perceive it. -Helen Emery, pediatric rheumatologist This poignant memoir about how the love of family and friends sustains us in the face of adversity speaks to each reader in a special way. John's story will inspire and bring hope, not only to victims of juvenile arthritis but to all who suffer from a chronic medical condition. -Maureen Mcguire An inspiring account of one man's lifelong personal and public struggles with the health-care, judicial, and political bureaucracies through advocacy for his clients-adopted Katfish-as well as for himself. -Jon Stevenson, M.D. Your amazing journey and unwavering devotion are truly an inspiration. Your tireless efforts have paved the way for all Katfish, and for this the Spokane JBR/W committee and all Katfish families will be forever grateful. -Jeanne McCarty

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