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OverviewFull Product DetailsAuthor: Rebecca Dresser (Daniel Noyes Kirby Professor of Law; Professor of Ethics in Medicine, Daniel Noyes Kirby Professor of Law; Professor of Ethics in Medicine, Washington University Law)Publisher: Oxford University Press Inc Imprint: Oxford University Press Inc Dimensions: Width: 21.60cm , Height: 3.10cm , Length: 14.50cm Weight: 0.476kg ISBN: 9780190459277ISBN 10: 0190459271 Pages: 320 Publication Date: 24 November 2016 Audience: College/higher education , Professional and scholarly , Postgraduate, Research & Scholarly , Professional & Vocational Format: Hardback Publisher's Status: Active Availability: Manufactured on demand ![]() We will order this item for you from a manufactured on demand supplier. Table of Contents"Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the ""Right to Try"" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index"ReviewsSome omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Rebecca Dresser has for years been a leading legal and ethical scholar on human subject research. Building on her own experience as a cancer survivor, her book is a powerful and forceful argument to give human subjects themselves a central role in the research, particularly as new kinds of medical research, as with genetics, come to the fore. She makes her case with a sharp eye for nuance and troublesome dilemmas, adding to the power of the book. - Daniel Callahan, President Emeritus, The Hastings Center Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Some omissions are so obvious it takes a special person to see them. An authority on medical ethics and someone who has suffered and recovered from a serious illness, no one is in a better position than Rebecca Dresser to identify the absence of the research subject's voice in clinical trials. Her sometimes painfully honest and always intellectually acute analysis opens up a new conversation about the way we conduct human experiments. - Jonathan Moreno, David and Lyn Silfen University Professor of Ethics, Perelman School of Medicine, University of Pennsylvania Author InformationRebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committee. She is the author of When Science Offers Salvation (2001), editor of Malignant (2012), and co-editor of The Human Use of Animals (1998, 2nd ed. 2008) all published by Oxford University Press. Tab Content 6Author Website:Countries AvailableAll regions |