Saving Babies?: The Consequences of Newborn Genetic Screening

Author:   Stefan Timmermans (Brandeis University) ,  Mara Buchbinder
Publisher:   The University of Chicago Press
ISBN:  

9780226273617


Pages:   320
Publication Date:   06 May 2015
Format:   Paperback
Availability:   Manufactured on demand   Availability explained
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Saving Babies?: The Consequences of Newborn Genetic Screening


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Full Product Details

Author:   Stefan Timmermans (Brandeis University) ,  Mara Buchbinder
Publisher:   The University of Chicago Press
Imprint:   University of Chicago Press
Dimensions:   Width: 1.60cm , Height: 0.20cm , Length: 2.30cm
Weight:   0.482kg
ISBN:  

9780226273617


ISBN 10:   022627361
Pages:   320
Publication Date:   06 May 2015
Audience:   College/higher education ,  Professional and scholarly ,  Postgraduate, Research & Scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Manufactured on demand   Availability explained
We will order this item for you from a manufactured on demand supplier.

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Reviews

In this sophisticated and grimly fascinating analysis of the social realities of newborn screening, Stefan Timmermans and Mara Buchbinder describe our brief experience with newborn genetic screening as a natural experiment, a sampling device illuminating the complex relationships among policy, technology, clinicians, medical institutions and medical advocacy--and their very powerful effect on patients and practitioners. As we have become all too well aware, technological progress can create new problems as it promises solutions to old ones. Saving Babies? should be of interest to anyone seriously concerned with health policy and the human condition in the twenty-first century. --Charles Rosenberg author of Our Present Complaint: American Medicine, Then and Now Recently expanded newborn screening for genetic disorders aims to enhance one of the triumphs of public health, right up there with vaccination and sanitation. But with millions of babies screened each year in all fifty states, one can lose sight of the fact that each family's situation is unique and that their perception of the screening program - its benefits, its anxieties, its unpronounceable disease names--will differ. Stefan Timmermans and Mara Buchbinder capture those individual stories with sensitivity and compassion. The clinical scenarios they describe, all true, are fascinating and eye-opening, revealing attitudes and responses by both the families and their physicians that are often quite unexpected, but always poignant. --Dr. Wayne W. Grody, M.D., Ph.D. UCLA School of Medicine Smart, humane, and beautifully written, Saving Babies? is respectful but critical of clinicians, parents, and policymakers as it vividly connects the reader to the human tragedies on the page. Without being maudlin, Stefan Timmermans and Mara Buchbinder show us how newborn screening really works. Despite the grim subjects, this profound book is a real treat to read. --Carol A. Heimer Northwestern University Smart, humane, and beautifully written, Saving Babies? is respectful but critical of clinicians, parents, and policymakers as it vividly connects the reader to the human tragedies on the page.Without being maudlin, Stefan Timmermans and MaraBuchbinder show us how newborn screening really works.Despite the grim subjects, this profound book is a real treat to read. --Carol A. Heimer Northwestern University


In this sophisticated and grimly fascinating analysis of the social realities of newborn screening, Stefan Timmermans and Mara Buchbinder describe our brief experience with newborn genetic screening as a natural experiment, a sampling device illuminating the complex relationships among policy, technology, clinicians, medical institutions and medical advocacy--and their very powerful effect on patients and practitioners. As we have become all too well aware, technological progress can create new problems as it promises solutions to old ones. Saving Babies? should be of interest to anyone seriously concerned with health policy and the human condition in the twenty-first century. --Charles Rosenberg author of Our Present Complaint: American Medicine, Then and Now


Author Information

Stefan Timmermans is professor and chair of sociology at the University of California, Los Angeles, and the author of Postmortem How Medical Examiners Explain Suspicious Deaths, among other books. Mara Buchbinder is assistant professor of social medicine and adjunct assistant professor of anthropology at the University of North Carolina at Chapel Hill.

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