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9780754678250

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'From empirical data to conceptual analysis, and from assessment of public opinion to recommendations for policy, Kaye and Stranger have managed to pack a lot into this edited volume that will please researchers, policy makers and lay readers alike. It is a much needed collection that lives up to its offer to provide principles and practice for biobank governance.' Eric M. Meslin, Indiana University Center for Bioethics, USA 'The governance of biobanks is a major ethical issue of our time. This volume combines the latest empirical findings with an international blend of scientific, ethical, legal and sociological expertise, resulting in a comprehensive critique of current practice and focused suggestions for future development. Helpfully jargon-free, it should be a major resource for biobank planners, funders, administrators, users - and participants.' Alastair Campbell, National University of Singapore, Singapore

Author Information

Jane Kaye is Wellcome Trust Fellow in Medical Law at the Ethox Centre, University of Oxford, UK Mark Stranger has taught sociology and worked as Senior Research Fellow and Executive Director at the Centre for Law and Genetics, University of Tasmania, Australia. He is the author of Surfing Life: Surface, Substructure and the Commodification of the Sublime. Mark Stranger, Jane Kaye, Dianne Nicol, Christine Critchley, Nadja Kanellopoulou, David E. Winickoff, Lukas Gundermann, Ulrich Stockter, Margaret Otlowski, Antonio Casado da Rocha, Ismael Etxeberria Agiriano, Kristien Hens, Kris Dierickx, R. Jean Cadigan, Arlene M. Davis, David Townend, Mark J. Taylor, Jessica Wright, Dita Wickins-Drazilova, Loane Skene, Atieh Zarabzadeh, R. William G. Watson, Geoff Bradley, Jane Grimson, Emmanuelle Rial-Sebbag, Aurelie Mahalatchimy, Dennis Chartier, Anne Cambon-Thomsen, Karine Bedard, Susan Wallace, Stephanie Lazor, Bartha Maria Knoppers, Martin Richards, Adrienne Hunt, Graeme Laurie, Trudo Lemmens, Lisa Austin, David Weisbrot.

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