Parents as Care Managers: The Experiences of Those Caring for Young Children with Cerebral Palsy

Author:   Gillian Bridge
Publisher:   Taylor & Francis Ltd
ISBN:  

9781138335271


Pages:   308
Publication Date:   05 June 2019
Format:   Hardback
Availability:   In Print   Availability explained
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Parents as Care Managers: The Experiences of Those Caring for Young Children with Cerebral Palsy


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Overview

First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.

Full Product Details

Author:   Gillian Bridge
Publisher:   Taylor & Francis Ltd
Imprint:   Routledge
Weight:   0.453kg
ISBN:  

9781138335271


ISBN 10:   1138335274
Pages:   308
Publication Date:   05 June 2019
Audience:   College/higher education ,  Professional and scholarly ,  Undergraduate ,  Postgraduate, Research & Scholarly
Format:   Hardback
Publisher's Status:   Active
Availability:   In Print   Availability explained
This item will be ordered in for you from one of our suppliers. Upon receipt, we will promptly dispatch it out to you. For in store availability, please contact us.

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Reviews

’...a detailed account of a comprehensive study that describes far-reaching implications for all those who care for children with cerebral palsy...a highly compassionate book that has implications for practitioners, researchers and policy makers.’ Family Practice ’...appealing to an (inter) professional readership...the book indicates the variability and complexity of the caring perspective which is probably the most enduring legacy of the range of studies and personal accounts which marked the last decade.’ British Journal of Social Work ’...successfully unravels the complicated and emotionally stressful lives of families with a disabled child...a useful starting point for tackling the plethora of unmet needs for this vulnerable group.’ Children and Society ’The style is easy to read and liberally interspersed with extracts of interviews with parents...It is a useful book...’ British Journal of Occupational Therapy


'...a detailed account of a comprehensive study that describes far-reaching implications for all those who care for children with cerebral palsy...a highly compassionate book that has implications for practitioners, researchers and policy makers.' Family Practice '...appealing to an (inter) professional readership...the book indicates the variability and complexity of the caring perspective which is probably the most enduring legacy of the range of studies and personal accounts which marked the last decade.' British Journal of Social Work '...successfully unravels the complicated and emotionally stressful lives of families with a disabled child...a useful starting point for tackling the plethora of unmet needs for this vulnerable group.' Children and Society 'The style is easy to read and liberally interspersed with extracts of interviews with parents...It is a useful book...' British Journal of Occupational Therapy


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Gillian Bridge

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