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OverviewThere are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care. Full Product DetailsAuthor: Brian S. Carter, MD FAAP (Professor of Pediatrics, University of Missouri-Kansas City School of Medicine, Children's Mercy Hospital) , Marcia Levetown, MD FAAP FAAHPM (Program Director for Palliative Care, The Methodist Hospital) , Sarah E. Friebert (Director, Pediatric Palliative Care, Akron Children's Hospital)Publisher: Johns Hopkins University Press Imprint: Johns Hopkins University Press Edition: second edition Dimensions: Width: 15.20cm , Height: 3.40cm , Length: 22.90cm Weight: 0.748kg ISBN: 9781421401492ISBN 10: 1421401495 Pages: 560 Publication Date: 10 December 2011 Recommended Age: From 17 Audience: General/trade , Professional and scholarly , General , Professional & Vocational Format: Paperback Publisher's Status: Active Availability: Available To Order ![]() We have confirmation that this item is in stock with the supplier. It will be ordered in for you and dispatched immediately. Table of ContentsList of Contributors Preface Part I: Societal and Institutional Issues Chapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of Care Chapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient Populations Chapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic Condition Chapter 17. Integrating Palliative Care with HIV Care and Treatment Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology IndexReviewsAn inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients. (Journal of the American Academy of Child and Adolescent Psychiatry) Author InformationBrian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children's Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine. Tab Content 6Author Website:Countries AvailableAll regions |