Overview

Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counsellors.

Full Product Details

9780801880056

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Reviews

A comprehensive look at pediatric palliative care. It should be a reference textbook that serves as a 'bible' in this area. The book is organized in a way that allows readers from different disciplines to quickly find and peruse chapters relevant to their practice. A great addition to the field. - Gregory J. Kato, M.D., The Johns Hopkins School of Medicine

Author Information

Brian S. Carter, M.D., is an associate professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Director of Palliative Care at the Methodist Hospital in Houston and a Soros Faculty Scholar Alumna of the Project on Death in America.

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