Overview

The ultimate goals of human genome research are the treatment, cure and eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased suceptibility to disease. Most genetic services today deliver diagnosis and counseling, effective treatment is rare. As more genes are identified there is growing pressure to implement new testing programs or broaden existing programs and otherwise increase both the number of available genetic tests and the amount of genetic information. The main issues concerned among others are: voluntariness of services, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, privacy, testing of minors, social discrimination and stigmatization.

Full Product Details

Author:   Irmgard Nippert ,  Heidemarie Neitzel ,  Gerhard Wolff
Publisher:   Springer-Verlag Berlin and Heidelberg GmbH & Co. KG
Imprint:   Springer-Verlag Berlin and Heidelberg GmbH & Co. K
Edition:   1999 ed.
Dimensions:   Width: 15.50cm , Height: 0.90cm , Length: 23.50cm
Weight:   0.580kg
ISBN:  

9783540659204

ISBN 10:   354065920
Pages:   169
Publication Date:   15 July 1999
Audience:   College/higher education ,  Professional and scholarly ,  Postgraduate, Research & Scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   In Print  
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Table of Contents

Introduction: The New Genetics: Social and EthicalFrom Research into Health Care — Implications for Users and Providers..- Opening Address.- Session I: The Provision of the New Genetics: In Whose Best Interest?.- Americans’ Attitudes toward Informed Consent for Breast Cancer Susceptibility Testing: Questions for Cross-Cultural Research.- Nondirectiveness — Facts, Fiction, and Future Prospects.- Predictive Genetic Tests: Destiny or Danger?.- Session II: Providing the New Genetics in Primary Care: Problems and Perspectives.- Genetic Services in Europe — Primary Care Genetics Is a Priority for Health Care Systems.- Education in Genetics.- Genesis, Compulsions, Acceptability, and Future of Pre-Natal Sex-Selection in India.- Session III: Can the Implementation of New Genetic Tests Be Safeguarded by Consensus Policy Recommendations?.- Ethics and Genetics in International Perspective: Results of a Survey.- Consensus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany — Data from the 1994-1996 Survey among Medical Geneticists and Patients.- The Case for Proposed International Guidelines on Ethical Issues in Medical Genetics.- Session IV: Critiques on the Provision of the New Genetics: Pros and Cons from Consumer and Provider Perspectives.- Statement on CF-Heterozygote Testing.- The Patients’ Perspective on the Provision of Genetic Testing.- The European Alliance of Genetic Support Groups, Their Ethical Code and the Provision of Genetic Services.- What Could a Balance Look Like between Individual Autonomy and Society’s Need to Regulate?.- New Genetics, New Ethics?.- Guidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services.

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