Overview

Lily shares the story of her little brother Peter, who has a dual diagnosis of Hirschsprung Disease and Down syndrome. Lily tells us more about life with these diagnoses and how the family has worked together to give Peter a happy, healthy, and safe home. Raising a child who has a hard time communicating his or her feelings (such as a child with Down syndrome) adds to the difficulty of coping with any complex medical condition such as Hirschprung Disease. Both conditions combined represent multiple challenges to the child and their family. Those dealing with similar situations will relate to such challenges. This book concludes with a letter addressed to adult caregivers in which the author shares her personal story and experience with her son, who has both conditions, in the hopes of helping others.

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9798988543978

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Author Information

Isabelle Schnadig is a French-American artist and illustrator, and author of children's books on difficult subjects such as the Hirschsprung and Alzheimer's diseases. She lives in Concord, MA, with her husband and her younger son. She is also the co-founder of Reachirschsprung (www.reachhd.org), the foundation which provides research, education and advocacy for children and families with Hirschsprung disease. Her new book is designed to help the children and their family that have a dual diagnosis: Down syndrome and Hirschsprung. Isabelle Schnadig is a French-American artist and illustrator, and author of children's books on difficult subjects such as the Hirschsprung and Alzheimer's diseases. She lives in Concord, MA, with her husband and her younger son. She is also the co-founder of Reachirschsprung (www.reachhd.org), the foundation which provides research, education and advocacy for children and families with Hirschsprung disease. Her new book is designed to help the children and their family that have a dual diagnosis: Down syndrome and Hirschsprung.

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