Overview

You are not imagining it. You are not exaggerating it. And no-you are not broken. Living with Ehlers-Danlos Syndrome (EDS) means navigating a world of unpredictable pain, fatigue, and frustration. But the physical symptoms are only part of the story. The emotional toll-anxiety, depression, trauma, identity loss, medical gaslighting-is just as real... and rarely talked about. Mental Health and Ehlers-Danlos Syndrome is the first book of its kind to bring together medical insight and real lived experience to support the whole person-body and mind. Written by a clinical expert and a patient living with EDS, this compassionate guide goes far beyond surface advice. It offers validation, practical tools, and hard-earned wisdom for anyone who feels exhausted, misunderstood, or alone in their journey. Inside, you'll find: How chronic pain reshapes mental health-and how to break the spiral Gentle strategies to manage anxiety, panic, fatigue, and low mood Tools for handling medical gaslighting and rebuilding self-trust Guidance for relationships, identity, and daily emotional pacing Advocacy scripts, calming rituals, symptom logs, and mindset resets Whether you're newly diagnosed, still searching for answers, or years into your EDS journey, this book will meet you where you are-with empathy, clarity, and zero judgment. You don't have to pretend you're okay. You don't have to have it all figured out. You just have to take the next step-and let someone walk it with you. You are not broken. You are brave. And you are not alone.

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