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OverviewThis book presents an in-depth discussion of how human disability and parental advocacy have been constructed in American society, including recommendations for a more authentically inclusive vision of parental advocacy. The authors provide a cultural–historical view of the conflation of racism, classism, and ableism that have left a deeply entrenched stigma-one that positions children with disabilities and children of color as less valuable than others. To redress these inequities, the authors offer a working model of co-constructed advocacy designed to benefit all families. Because advocacy is not a ""one size fits all"" endeavor, the authors propose meeting families where they are and learning their strengths and needs, while preparing and repositioning families to empower themselves.Book Features: Takes a cultural–historical view that explores the reasons why individuals with disabilities are so stigmatized. Shows how the intersection of different stigmatized identity markers, such as poverty, race, and language, have been woven into negative interpretations of ""difference."" Celebrates the history of parent advocacy in the United States since World War II. Examines how social and racial privilege have dictated which parent voices are heard. Proposes collaborative approaches that can produce more authentic and more representative advocacy. Explores the motivations and purposes that drive parent advocacy. Full Product DetailsAuthor: Beth Harry , Lydia Ocasio-Stoutenburg , Alfredo J. ArtilesPublisher: Teachers' College Press Imprint: Teachers' College Press Dimensions: Width: 15.20cm , Height: 1.00cm , Length: 22.60cm Weight: 0.275kg ISBN: 9780807763841ISBN 10: 0807763845 Pages: 192 Publication Date: 10 April 2020 Audience: Professional and scholarly , Professional & Vocational Format: Paperback Publisher's Status: Active Availability: Temporarily unavailable ![]() The supplier advises that this item is temporarily unavailable. It will be ordered for you and placed on backorder. Once it does come back in stock, we will ship it out to you. Table of Contents"Acknowledgments vii 1. Constructing Meanings of Human Difference at the Intersections of Identity: Personal and Conceptual Considerations 1 The Authors' Lenses 3 DisCrit: A Lens for Viewing Family and Community Intersections 4 The Co-Construction of Advocacy 8 Overview of the Book 8 Qualitative Vignettes and Authors' Reflections 10 2. Parent Advocacy and the Challenge of Difference 13 Personal Perspectives 14 Goals and Avenues of Advocacy 16 Why Advocacy for the Value of the Child? 18 3. Constructing Race and Disabilities as Intrinsic Differences: A Cultural-Historical View 25 ""Intrinsic"" Attributions: From the Supernatural to Science 25 Conquest, Slavery, and Colonization: The Intertwining of Race, Disability, and ""Normality"" 28 Families with Developmentally Disabled Children in the 19th Century 32 The 20th Century: The Hegemony of Intelligence as a Measurable Construct 36 The 20th Century and the Disempowerment of Parents 42 4. Parent Voices Rising: Challenging Constructions of Difference 49 Advocacy and the Judges 49 Parents' Published Narratives 51 The Emergence of Advocacy Organizations 59 Exposing the Institutions 65 5. The Social Construction of Humanness 71 The Meaning of Disability 75 The Painful Contours of Parent Advocacy 77 6. Advocacy Toward the EHA: Converging Interests and Intersections 93 Parent Advocacy: The Law as the Vehicle 93 The Construction of Disability Under the Law 96 The Label as a Negotiating Tool 102 The Label as Exclusion or Confusion 107 7. Parent Advocacy Under the Umbrella of the EHA/IDEA 109 Challenges of Racism, Ethnocentrism, and Context 110 Parent Advocacy: The Law as the Obstacle 125 8. Reframing Advocacy, Repositioning the Advocate 139 De-Constructing Advocacy 140 Revisiting Our Guiding Principles 145 Co-Constructing Advocacy: Developing a New Model 151 Forging Ahead 157 The Next Chapter 158 References 161 Index 175 About the Authors 184"Reviews“Harry and Ocasio-Stoutenburg (both, Univ. of Miami) combine academic expertise with personal experience as parents of children with disabilities in this informative and emotionally driven work. The book provides a qualitative examination of the treatment of children with disabilities and their families using an intersectional approach through the lens of ‘DisCrit,’ a combination of disability studies and critical race theory. Though the volume is intended for educators and academics, it also provides hope, suggestions, and a look into oppressive societal structures that would be useful for parents who advocate for their own disabled children.” —CHOICE “This book is a remarkable account of the legacy of advocacy among parents of children with disabilities in the U.S., with particular attention to the experiences of parents of color. Centered in the theoretical frameworks of DisCrit and intersectionality, the authors take readers through a critical, historical journey of how disabilities have been socially constructed, how parents’ voices have been disregarded by professionals, and how collective parental advocacy efforts have evolved over time.” —Teachers College Record Harry and Ocasio-Stoutenburg (both, Univ. of Miami) combine academic expertise with personal experience as parents of children with disabilities in this informative and emotionally driven work. The book provides a qualitative examination of the treatment of children with disabilities and their families using an intersectional approach through the lens of 'DisCrit, ' a combination of disability studies and critical race theory. Though the volume is intended for educators and academics, it also provides hope, suggestions, and a look into oppressive societal structures that would be useful for parents who advocate for their own disabled children. --CHOICE Author InformationBeth Harry is a professor of special education and chair of the Department of Teaching and Learning at the University of Miami, and coauthor of Why Are So Many Minority Students in Special Education? Second Edition. Lydia Ocasio-Stoutenburg is a doctoral candidate at the University of Miami. Tab Content 6Author Website:Countries AvailableAll regions |