Overview
LIVING PROOF is the true story of an incurable disease, a mother's promise, and a family's love. John Del Guercio was diagnosed in 2002 with Spinal Muscular Atrophy (SMA type 1) when he was just two months old. His doctors predicted he would not make it past age two, and saw no hope for a treatment for another ten to fifteen years. John's family, however, refused to give up hope. Against all odds, John survives six months, passes his first-year mark, and reaches his second birthday. In 2016, when John was fourteen years old, the FDA approved the first ever treatment for SMA type 1; John received his first shot of the drug Nusinersen, or Spinraza, a few months later. In the years in between, John works tirelessly with a devoted team of physical, occupational and speech therapists on a daily regimen to keep his body and mind strong enough for when he is able to walk. John's journey with his family was sometimes incredibly challenging, and not one all would travel, but it also created a life of grace, beauty and joy beyond expectation. LIVING PROOF shows us one family who embraced a re-envisioned life and learned that the most terrible news sometimes blooms into something good.
Full Product Details
Author: Judith A Conte ,
Marianne del Guercio
Publisher: Mighty Acorn Press
Imprint: Mighty Acorn Press
Dimensions:
Width: 15.20cm
, Height: 1.20cm
, Length: 22.90cm
Weight: 0.313kg
ISBN: 9780578580166
ISBN 10: 0578580160
Pages: 210
Publication Date: 01 December 2021
Audience:
General/trade
,
General
Format: Paperback
Publisher's Status: Active
Availability: Available To Order
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Reviews
John's life, and Judith Conte's telling of that life, should empower and renew a determination to affirm the victories that are possible for committed love. Everyone should read this story...His bravery, and that of his family, is a wondrous tale of science and family devotion. Terence Alfred Aditon, author of What I Knew About Clare, and the forthcoming Land of Angels: The Holy Path.
Author Information
Judith Conte lives in Anchorage, Chicago and St. Croix where she shares life with family and friends. While she worked as a lawyer in a day job, Judith wrote a memoir about her life in the U.S. Virgin Islands in the 1980's titled, Paradise Blown, and a screenplay of the same name. During her time in St. Croix, Judith was also senior writer for the travel and tourism publication, The Croixer. In Alaska she wrote a divorce advice column, a series of newspaper vignettes on community life in Anchorage, and helped create Anchorage Remembers: An Anthology of Alaskan Writers Celebrating the Centennial, 1915-2015.
