Overview

Introduction .- The impact of liver disease on adolescent development .- a. Adolescent development .- b. Impact of liver disease on adolescent development .- i. Biological impact including growth and nutrition .- ii. Psycho-social impact .- Specific liver diseases .- a. Biliary atresia .- b. Alagille syndrome .- c. Alpha 1 antitrypsin deficiency .- d. Genetic cholestatic disorders .- e. Autoimmune hepatitis and sclerosing cholangitis .- f. Wilson disease .- g. Non-alcoholic fatty liver disease .- h. Portal hypertension .- i. Cystic fibrosis .- j. Sickle cell disease .- Liver transplantation in adolescence .- a. Listing for liver transplantation: criteria, timing and waitlist, Re-transplantation .- b. Long-term patient and graft outcome .- Challenges for adolescents and young adults with liver disease .- a. Adherence to treatment .- b. Mental health problems .- c. Health related quality of life .- d. Education and employment .- e. Alcohol and recreational drugs .- f. Fertility and pregnancy .- Provision of youth friendly liver services beyond transition .- a. Engaging young people: communication skills .- b. Development of self-management skills .- c. Peer support .- d. Models of care for adolescents and young adults including transition from paediatric to adult care .- What is it like to .... .- a. be young and have a liver disease? .- b. be a parent of a young person with liver disease .- c. look after a young person with liver disease .

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9783030988104

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