Overview

When we were told my grandfather had a rare brain disease, we were not only brokenhearted but also fearful of what his future would look like. Doctors told us most of his muscles would weaken and, over time, stop working. We had so many questions: Will he be able to keep doing the things he loves? How quickly will the changes begin to take place? And, most importantly, how do we stay connected to him? This is a true story about how my family and I learned to accept the struggles my grandfather experienced and how we were determined to find different ways to show our love.

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9781637656518

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Janice Zuppa Benacchio began her career as a marketing executive at a firm in Rockefeller Center in New York City. After being laid off, she went back to school to earn an MA in education. For the past sixteen years, she has been a special education teacher working with young children with multiple disabilities in New Jersey. Janice is a loving wife to her husband, Greg, and a devoted mother to two wonderful children, Kaitlyn and Kevin. Her family loves to travel and spend time with their rescue dog, Kali.This is Janice's debut as an author. She, along with her daughter, created this book to share their thoughts, feelings, and experiences about her father's rare brain disease in the hopes they can help others who are in need of guidance and support.

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