Intellectual Disability and the Right to a Sexual Life: A Continuation of the Autonomy/Paternalism Debate

Author:   Simon Foley (Queens University Belfast)
Publisher:   Taylor & Francis Ltd
ISBN:  

9780367430955


Pages:   192
Publication Date:   11 September 2019
Format:   Paperback
Availability:   In Print   Availability explained
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Intellectual Disability and the Right to a Sexual Life: A Continuation of the Autonomy/Paternalism Debate


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Author:   Simon Foley (Queens University Belfast)
Publisher:   Taylor & Francis Ltd
Imprint:   Routledge
Weight:   0.453kg
ISBN:  

9780367430955


ISBN 10:   0367430959
Pages:   192
Publication Date:   11 September 2019
Audience:   College/higher education ,  Tertiary & Higher Education ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active
Availability:   In Print   Availability explained
This item will be ordered in for you from one of our suppliers. Upon receipt, we will promptly dispatch it out to you. For in store availability, please contact us.

Table of Contents

Introduction, Chapter 1. The who, the what and the why, 1.1. Research Methodology, 1.2. The contested politics of researching disability, 1.3. My Conceptual Framework, 1.4. Ideological affiliations, Chapter 2. The Autonomy/Paternalism Debate, 2.1. Introduction, 2.2 The Autonomy/Paternalism Debate, 2.3 Historical and Cultural Discourses of Sexuality, 2.4 The focus on genital sex explained, 2.5 The dangerous discourse of sexual expression, 2.6 Liberal society and changing sexual mores, 2.7 The parental perspective, 2.8 Facilitated sex, 2.9 Conceptualising disability, 2.10 My conceptual framework, Chapter 3. Research Findings and Analysis: The Parental Perspective, 3.1 Introduction, 3.2 Theme 1: Parental perception of what it means to be normal - the rationale behind the paternalistic regime of care, 3.3 Theme 2: Parental refutation of the charge that their regime of care is to 'blame' for the celibate lives led by some of the adult children with Down syndrome, 3.4 Theme 3: Parental view of their adult sons and daughters with Down syndrome as sexual beings – and the desire that they find a girlfriend/boyfriend, 3.5 Theme 4: The privileging of ‘loving’ boyfriend/girlfriend relationships over sexual expression for its own sake: the gender bias in action, 3.6 Interviews with Adults with Down Syndrome, 3.7 Theme 1: The desire to move out of the parental home, 3.8 Theme 2: The desire to have more control over how their leisure time is spent, 3.9 Theme 3: The role played by the mother as reluctant jailor, 3.10 Theme 4: The desire to have a boyfriend/girlfriend, 3.11 Theme 5: What one does in a boyfriend/girlfriend relationship?, 3.12 Theme 6: The desire to be normal – the abject in action, 3.13 Analysis of the Findings, Chapter 4. Third Rail Sexual Politics under Scrutiny: The Question of Faciliated Sex, 4.1 Focus group findings, 4.2 Focus group analysis, Chapter 5. A modest proposal regarding the normalisation of facilitated sex, 5.1 Introduction, 5.2 Ideological Critiques in form and content, 5.3 The Three Faces of Power Debate, 5.4 Conclusion, Chapter 6. Conclusions, References

Reviews

'This is a provocative and ambitious piece of work that is driven by an unapologetic desire to interrogate assumptions about the common placed infantilisation of Intellectually Disabled adults, particularly those with Down Syndrome, and especially when it comes to genital sex. A stand out strength of this book are the thought provoking and honest narratives that Foley has elicited from his participants; mostly mothers. Furthermore, we hear his voice throughout, as both a researcher pushing the boundaries from the `inside' and as a sibling of an adult sister who has Down Syndrome. His positionality is explicit and forms a nuanced part of the framework. This book will certainly open the debate and prompt a discussion.' - Dr Chrissie Rogers, Senior Lecturer in Sociology at Aston University


Author Information

Dr Simon Foley of QUB Belfast has taught Sociology in various universities throughout the United Kingdom and the Republic of Ireland over the past 10 years. He has published widely on issues of sexuality, social theory and social change and is an acknowledged international expert on the sociology of disability.

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