Overview

One in five families has a child with special health care needs-but medical and human service professionals often don't get the training they need to provide long-term, integrated care for these children. Filling a critical gap in professional education, this ground-breaking textbook and training tool presents a comprehensive, interdisciplinary framework for delivering effective health care to children with disabilities and chronic illnesses. Going far beyond the traditional model of treating and reducing symptoms, renowned paediatrician Heidi Feldman gives professionals a big-picture blueprint for improving the lives of children with disabilities and helping them participate fully in family and community life. PREPARE HEALTH CARE PROFESSIONALS TO Focus on three key priorities that improve children's lives-inclusion in community life, contribution to society, and health and well-being Understand and resolve the challenges of delivering health care to children with disabilities Collaborate on comprehensive, integrated care plans with parents and other professionals Implement family- and person-centred care at the clinical, organisational, and policy levels Address system fragmentation and work toward coordinated care Engage in system and policy reform to ensure better clinical and functional outcomes for children WITH SPECIAL COMMENTARIES IN EVERY CHAPTER: To illustrate key points, Dr. Feldman relates powerful stories from her 30+ years of experience working with children with disabilities and their families. Readers will get invaluable insights on successful programmes, best practices, family concerns and experiences, professional preparation, and more.

Full Product Details

9781598572346

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Reviews

With health care delivery in flux, the timing of this book could not be better. With her positive, engaging, and compelling writing style, Feldman reframes the paradigm of the approach to the care of children with disabilities through the lenses of clinical care, education, research, and policy. --Nancy J. Roizen, MD Director, Division of Developmental/Behavioral Pediatrics and Psychology, Professor of Pediatrics, UH/Rainbow Babies and Children's Hospital (06/19/2013)

Heidi Feldman presents us with a paradigm shift for the care of children with disabilities. Rather than providing only biological treatments, she urges us to integrate functional and environmental considerations with biological approaches. Heidi's prescription is one that should be widely followed. --Paul P. Wang, MD

Author Information

Heidi M. Feldman, M.D., Ph.D., is Ballinger-Swindells Professor of Developmental and Behavioral Pediatrics at Stanford University and Medical Director for Developmental and Behavioral Pediatric Programs at Lucile Packard Children's Hospital, in Palo Alto, California. Nathan J. Blum, M.D., Co-director, Behavioral Pediatrics Clinic, Medical Director, Center for Complex Medical Management, and Attending Physician, The Children's Seashore House of The Children's Hospital of Philadelphia; Assistant Professor, Pediatrics, Division of Child Development, University of Pennsylvania School of Medicine. Dr. Blum received his medical degree from The Johns Hopkins University School of Medicine and completed a residency in pediatrics at The Children's Hospital of Philadelphia. He completed a postdoctoral fellowship in developmental-behavioral pediatrics at The Children's Seashore House of The Children's Hospital of Philadelphia. He is Co-director of the Behavioral Pediatrics Clinic for management of common behavior problems in children at Children's Hospital. In addition to publishing in peer-reviewed journals, Dr. Blum is a co-editor of a textbook of pediatric primary care and is one of the authors of the Ask the Experts feature in Contemporary Pediatrics. His academic interests encompass common behavior problems in children, self-injurious behavior in children with developmental disabilities, and the coordinated management of behavioral, medical, and psychological problems in children with chronic illnesses. Alexis Hansen, M.D., is currently a family practice resident with a strong interest in the care of individuals with disabilities. As a medical student, she conducted research focused on evaluating a noninvasive manual therapy for children with cerebral palsy and served as teaching assistant in an undergraduate course on developmental disabilities. As a family physician, she plans to work to improve the experience of these populations in the health care system.

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