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"""A great service. Well organized and tells a forty-year-long tale with a series of poignant chapters that bring the humanity of the patients, scientists, and others at the companies into the narrative."" -- ""Jim Greenwood, six-term US Congressman; retired President and CEO of Biotechnology Innovation Organization "" ""A one-of-a-kind book by a one-of-a-kind author. 'One-of-a-kind' book because it's written from the ground real-time, not from twenty thousand feet. 'One-of-a-kind' author because it's the voice of not only an observer but, more importantly, an active participant over forty years."" -- ""John Howe, former President and CEO, Project HOPE; recipient of public service awards from the American Medical Association, the US Army, the US Surgeon General, and many others"" ""Both unusually informative and interesting, Inside the Orphan Drug Revolution should get strong readership as a biography of the Orphan Drug Act and the progress it stimulated. It is an important contribution to the public discourse."" -- ""Phil Sharp, winner, 1993 Nobel Prize in Medicine; MIT Institute Professor; Biogen Co-Founder"" ""Patient-centered biotech companies have brought hope to families facing rare genetic diseases. Jim Geraghty has long been at the center of that revolution at Genzyme and elsewhere. His book alerts readers to policy issues of importance to every prospective parent or grandparent or anyone who cares about the health of humankind."" -- ""Deval Patrick, former two-term Governor of Massachusetts "" ""The Orphan Drug Act has been one of the most successful pieces of health-related legislation of the last fifty years. It truly has wrought a revolution for the lives of countless families. This book brings to life the forgotten story of the patient advocates who championed it, the resistance overcome to pass it, and the dramatic advances it has enabled for countless people afflicted by devastating genetic diseases."" -- ""Henry Waxman, twenty-term US Congressman; principal sponsor of the Orphan Drug Act"""

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