Overview

With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions. Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men—and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clinical research. While the prominence of these inclusive practices has offered hope to traditionally underserved groups, Epstein argues that it has drawn attention away from the tremendous inequalities in health that are rooted not in biology but in society. “Epstein’s use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines. . . . Highly recommended.”—Choice “A masterful comprehensive overview of a wide terrain.”—Troy Duster, Biosocieties

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9780226213095

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Epstein's use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines.... Highly recommended. - Choice A balanced analysis of the positive and negative effects of institutional changes on groups that are traditionally underrepresented in biomedical research. - New England Journal of Medicine

Author Information

Steven Epstein is professor of sociology and director of the Science Studies Program at the University of California, San Diego. He is the author of Impure Science: AIDS, Activism, and the Politics of Knowledge and coauthor of Learning by Heart: AIDS and Schoolchildren in America's Communities.

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