Overview

This collection of twelve life stories delves into the experiences of families of Hansen's Disease (Leprosy) patients who tell their own stories in their own words. In detailed interviews spanning more than ten years, Ai Kurosaka presents their struggles from the previously neglected perspective of family members of patients. The storytellers tell how they were torn by experiences of separation, discrimination and broken relationships.  Like fugitives, many spent years hiding the truth and deceiving others to protect themselves and their families, and they reveal how this affected their relationships with others, but also with themselves. These recollections reveal agony and repentance, but are also stories of resilience that show the courage of the storytellers in speaking up and in challenging the government's policy on Hansen's Disease. This book breaks the silence of families of Hansen's Disease patients and seeks to restore relationships for families of patients and the wider society.

Full Product Details

Author:   Ai Kurosaka
Publisher:   Kyoto University Press and Trans Pacific Press
Imprint:   Kyoto University Press and Trans Pacific Press
Edition:   None ed.
Dimensions:   Width: 14.00cm , Height: 1.50cm , Length: 21.60cm
Weight:   0.386kg
ISBN:  

9781925608823

ISBN 10:   1925608824
Pages:   320
Publication Date:   30 January 2019
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Temporarily unavailable  
The supplier advises that this item is temporarily unavailable. It will be ordered for you and placed on backorder. Once it does come back in stock, we will ship it out to you.

Table of Contents

Figure Photographs Acknowledgements Introduction Short History of Hansen's Disease in Japan Part I: Stories as Told by Daughters and Sisters Episode 1: Restored Memories Episode 2: Thanking Parents for Giving Birth to Me Episode 3: Painful Consciousness of Hating My Own Father Episode 4: I Should Have Been Nicer to My Father Episode 5: Never Ever Moving Away Episode 6: Living in the Sanatorium despite Being a Non?patient Part II: Stories as Told by Sons and Brothers Episode 7: Son of a 'Leper' Episode 8: At the Forefront of the Bereaved Families' Lawsuit Episode 9: Forced out of High School Episode 10: Growing up without Knowing Parents Episode 11: Proudly Born in Wak?en Episode 12: Unfulfilled Aspirations Conclusion Notes References Further Reading Index

Reviews

Author Information

Ai Kurosaka is Associate Professor at Tohoku Gakuin University. She obtained a PhD in Sociology from Saitama University, and her research focuses on social discrimination in Japan, especially in relation to Hansen's disease and Buraku discrimination.

Tab Content 6

Author Website:  

Countries Available

All regions