Overview

My husband had Lewy body dementia (LBD). Even as a registered nurse, I had only a vague idea of what it was. From the little information I could find, I knew that the prognosis was not good. It was then that I started looking for accounts of people with that diagnosis. What was it like for them and for their caregivers? Every story I read helped me feel less alone and more informed. Because the course of the disease is a little different for each individual, it was difficult to know what to expect next. I recorded our journey over the next five years. Writing about the highs and the lows helped me honor the process. It is my hope that by adding this story to the overall picture of LBD that others will find their journey less frightening, more purposeful, and more honorable in spite of the difficulties.

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As a registered nurse and caregiver, Shirley Dietz has had many experiences with people going through health crises and life changing turmoil. Now as a writer and an affected family member, she has recorded her experience during the last years of her husband's life with Lewy body dementia. Shirley lives in the northwoods of Wisconsin, by choice. In addition to writing, she processes life while hiking, biking, skiing and being in relationships with friends, family and the forest.

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