Overview

Full Product Details

Author:   Deborah Mascalzoni
Publisher:   Springer
Imprint:   Springer
Edition:   Softcover reprint of the original 1st ed. 2015
Volume:   14
Dimensions:   Width: 15.50cm , Height: 1.50cm , Length: 23.50cm
Weight:   4.394kg
ISBN:  

9789402405217

ISBN 10:   9402405216
Pages:   277
Publication Date:   09 October 2016
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   In Print  
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Table of Contents

"Introduction; Deborah Mascalzoni.- Biobanks: a definition; Barbara Parodi.- A participatory space beyond the ""autonomy versus property"" dichotomy; Mariachiara Tallacchini.- Intellectual Property and Biobanks; Naomi Hawkins.- Consent, Privacy and Property in the Italian Biobanks Regulation: A Hybrid Model within EU?; Matteo Macilotti, Simone Penasa, Marta Tomasi.- Data Protection Principles and Research in the Biobanks Age; Roberto Lattanzi.- The New General Data Protection Regulation – where are we are and where might we be heading?; Jane Reichel and Anna-Sara Lind.- The Tension between Data Sharing and the Protection of Privacy in Genomics Research; Jane Kaye.- Incidental findings: the time is not yet ripe for a policy for biobanks; Jennifer Viberg, Mats G. Hansson, Sophie Langenskiöld, Pär Segerdahl.- Biobanking across borders: the challenges of harmonization; Ruth Chadwick, Heather Strange.- Governing Biobanks Through A European Infrastructure; Emmanuelle Rial-Sebbag, Anne Cambon-Thomsen.- EU governance for research and ethics in biobanks; Jane Reichel.- A Bold Experiment: Iceland’s Genomic Venture    ; David Winickoff.- The Estonian Genome Center, University of Tartu; Aime Keis.- The management of the ethical aspects of a local mental diseases biobank for research purposes. An Italian experience; Corinna Porteri.- Biobank governance in Spain: From the autonomy of research ethics committees to the autonomy of lay people; Antonio Casado da Rocha.- Public deliberation and the role of stakeholders as a new frontier in the governance of science: the British Columbia Biobank Deliberation and the DePGx Project; Claudio Corradetti, Gillian Bartlett.- Making researchers moral; Linus Johnsson, Stefan Eriksson, Gert Helgesson, Mats G. Hansson."

Reviews

This book examines the ethical approach to biobanking law and policy from a European perspective, both national and international. It provides case studies and general overviews of specific policies that surround biobanking issues while focusing on issues of privacy. ... The audience includes those interested in policymaking in the global context. Lawyers, policymakers, students, and research ethicists all would find this book helpful. (Jaime Konerman-Sease, Doody's Book Reviews, November, 2015)

Author Information

Author's affiliation is: Deborah Mascalzoni Centre for Biomedicine European Academy Bolzano Viale Druso 1, 39100 Bolzano

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