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Author:   Ruth B. Purtilo, PhD (Former Director and Professor Emerita, MGH Institute of Health Professions) ,  Henk A.M.J. ten Have, MD PhD (Duquesne University) ,  Christine K. Cassel, MD (President, American Board of Internal Medicine)
Publisher:   Johns Hopkins University Press
Imprint:   Johns Hopkins University Press
Dimensions:   Width: 15.20cm , Height: 2.60cm , Length: 22.90cm
Weight:   0.522kg
ISBN:  

9780801898396

ISBN 10:   0801898390
Pages:   396
Publication Date:   27 October 2010
Recommended Age:   From 17
Audience:   College/higher education ,  Professional and scholarly ,  Postgraduate, Research & Scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Manufactured on demand  
We will order this item for you from a manufactured on demand supplier.

Table of Contents

Foreword Preface Acknowledgments List of Contributors Introduction. Historical Overview of a Current Global Challenge Part I: The Health Care Challenge of Alzheimer Disease: Basic Societal, Pathological, and Clinical Issues Chapter 1. Darkness Cometh: Personal, Social, and Economic Burdens of Alzheimer Disease Chapter 2. Neuropathology and Symptomatology in Alzheimer Disease: Implications for Caregiving and Competence Chapter 3. The Clinical Challenge of Uncertain Diagnosis and Prognosis in Patients with Dementia Part II: European Voices on U.S. and European Models of Palliative Care Chapter 4. Expanding the Scope of Palliative Care Chapter 5. Hospital-based Palliative Care and Dementia, or What Do We Treat Patients For and How Do We Do It? Chapter 6. Elderly Persons with Advanced Dementia: An Opportunity for a Palliative Culture in Medicine Part III: Philosophical and Theological Explorations Chapter 7. Autonomy and the Lived Body in Cases of Severe Dementia Chapter 8. The Moral Self as Patient Chapter 9. The Practice of Palliative Care and the Theory of Medical Ethics: Alzheimer Disease as an Example Part IV: Clinical Ethics Issues: Focus on Patients and Caregivers Chapter 10. The Tendency of Contemporary Decision-making Strategies to Deny the Condition of Alzheimer Disease Chapter 11. Advance Directives and End-of-Life Decision Making in Alzheimer Disease: Practical Challenges Chapter 12. Saying No to Patients with Alzheimer Disease: Rethinking Relations among Personhood, Autonomy, and World Chapter 13. The Ethical Challenge of Treating Pain in Alzheimer Disease: A Dental Case Chapter 14. Alzheimer Disease and Euthanasia Part V: Organizational Ethics Issues: Educational Initiatives, Laws, and Allocation Decisions Chapter 15. The Role of Nurses and Nursing Education in the Palliative Care of Patients and Their Families Chapter 16. Ethical Dimensions of Alzheimer Disease Decision Making: The Need for Early Patient and Family Education Chapter 17. Changing Patterns of Protection and Care for Incapacitated Adults: Perspectives from a European Society in Transition Chapter 18. Social Marginalization of Persons with Disability: Justice Considerations for Alzheimer Disease Commentary on Part V: A Clinician's Commentary from a Post-Soviet Society on Organizational Issues of Care for Alzheimer Disease Part VI: Research Underpinnings for an Ethical Model of Palliative Care Chapter 19. Biomedical Research in Alzheimer Diseas Chapter 20. Conducting Research in the Alzheimer Disease Population: Balancing Individual, Group, Family, and Societal Interests Chapter 21. Drugs and Dementia: Pharmacotherapy and Decision Making by Primary Caregivers Appendix A. The Declaration of Berg en Dal on Ethical Principles Guiding Palliative Care of Persons with Alzheimer's Disease Appendix B. Framework for an Educational Module for Health Professionals Index

Reviews

The editors ought to be congratulated for creating a space that allows us to retell our individual and social stories of dying with dementia. -- Peter Whitehouse, M.D., Ph.D New England Journal of Medicine Books like this, which take a global view of the effects of disease, are much needed. All of us working in palliative care would benefit from reading this book as it exposes assumptions derived from the treatment mostly of cancer patients and encourages us to review our thoughts on the intrinsic value of all life, however opaque. Palliative Medicine Offers valuable insights into the philosophy and practice of palliative care in AD from perspectives of a group of American and European experts... It raises important questions and poses solutions to a variety of pressing clinical issues. American Journal of Alzheimer's Disease and Other Dementias This volume is a definite resource for any geriatric care manager... It presents many viewpoints and provides a number of good insights. -- Anita H. Miller Inside GCM Highly recommended for physicians and other health care professionals. -- Michael Gordon Canadian Journal on Aging A short book review cannot do justice to the magnitude and worth of this book... It is a compendium of hope. -- David Kuhl Ageing and Society

A short book review cannot do justice to the magnitude and worth of this book... It is a compendium of hope. - Ageing and Society Books like this, which take a global view of the effects of disease, are much needed. All of us working in palliative care would benefit from reading this book as it exposes assumptions derived from the treatment mostly of cancer patients and encourages us to review our thoughts on the intrinsic value of all life, however opaque. - Palliative Medicine The editors ought to be congratulated for creating a space that allows us to retell our individual and social stories of dying with dementia. - New England Journal of Medicine Offers valuable insights into the philosophy and practice of palliative care in AD from perspectives of a group of American and European experts... It raises important questions and poses solutions to a variety of pressing clinical issues. - American Journal of Alzheimer's Disease and Other Dementias

Author Information

Ruth B. Purtilo, Ph.D., is James Marsh Presidential Professor-at-Large at the University of Vermont and a professor emerita of the MGH Institute of Health Professions. Henk A.M.J. ten Have, M.D., Ph.D., is a professor of medical ethics at the University Medical Centre Nijmegen, the Netherlands, and director of the Division of Ethics of Science and Technology, UNESCO, Paris.

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