Overview

Terry Cohen, a young adult with Myotonic Dystrophy never wrote a book, and then after graduating from high school, he decided to write one dedicated to all young people with progressive disabilities and seeking a full life. Terry writes-- he has a disability and disease inherited from his mom, and must face it every day of his life. As a teen, he struggled the most, and then it hit him-- ""My disability isn't in charge of my life. I am."" It was up to Terry to make his life worthwhile, despite all his problems. Here are just a few of the skills he writes about: --Getting doctors to stop talking over your head and scaring you --Finding healthcare buddies who really care about you, not just treating your disability --Making good friends --What to do when people don't give you a chance or expect next to nothing from you --Having fun; enjoying your life despite your limitations --Achieving the goals you set for yourself --Living the life you want

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9780976952404

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Reviews

At last, a wonderful book for very special people whose lives are precious - written by someone just like themselves. This will touch so many young lives. Thank you, Terry! Anne Alpert, CT Teacher of the Year and Loving Mom of a Special Needs Young Adult Inspiring and full of terrific ideas. Our teens and young adults will all LOVE this book. Mayer Stiskin, Director Emeritus, Summit Schools, NY & Founder Summit Special Needs Camp, PA

At last, a wonderful book for very special people whose lives are precious - written by someone just like themselves. This will touch so many young lives. Thank you, Terry! Anne Alpert, CT Teacher of the Year and Loving Mom of a Special Needs Young Adult Inspiring and full of terrific ideas. Our teens and young adults will all LOVE this book. Mayer Stiskin, Director Emeritus, Summit Schools, NY & Founder Summit Special Needs Camp, PA

Author Information

Terry has now written two books, and given invited speeches. His disease has now progressed. He has an electric scooter, and drives an accessible van. At one point, he had a special girlfriend who he wanted to marry, but she just could not break away from the family who loved her. Terry moved back home to Florida. He since has traveled extensively with his caregiver dad. He has traveled the world while he could. His second book, Travel Near & Travel Far: Step Out of Your Disabled World, has been featured on the New York Times Travel Section, and his books are both endorsed by many websites, including the Christopher Foundation and the Myotonic Foundation. Barry Cohen has been a parent, caregiver, and travel companion for Terry Cohen. He has co-authored two books with Terry and appeared and nationwide radio programs talking about Terry's approach to having a full life. Barry has been a college professor, consulting psychologist, and head of a psychological services firm to global companies. Now, in his retirement years, he continues to offer his counsel to support groups, including the Florida Myotonic Dystrophy group and the National Conference of the Myotonic Dystrophy Foundation.

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