Overview

This book was inspired by my daughter Lilah. Lilah is a 4 year old little girl who was born with Recessive Dystrophic Epidermolysis Bullosa. A one in one million incurable, painful, and fatal genetic condition characterize by extreme fragility of the skin, connective tissues, and mucosal membranes. These children are often referred to as butterfly children as they are internally and externally as fragile as a butterfly. Although she fights open wounds and blisters daily, she is the epitome of strength and bravery. Her story and the story of many other butterflies inspired me to write this book. In hopes that children like Lilah might not feel so alone. They are the most incredible warriors on this earth! They, like Lilah, are the heroes among us! With more awareness comes the possibility of a cure! Thank you for doing your part and sharing her inspirational story with your children!

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9781643726298

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A 32-year-old single mother of three incredible children A teacher of exceptional learners at the high school level. Her middle child was born with a rare and incurable condition called Recessive Dystrophic Epidermolysis Bullosa. Her passion is bringing awareness to this disease in hopes that it will inspire others and bring more funding to finding the cure. Life is too short not to go for all of your dreams! Caitlyn is a 2018 graduate of the animation program at Huntington University in Huntington, Indiana. She is currently working as a graphic designer while illustrating her second children's book after Daniel and the Donkey Factor, by Kevin P. Horath. When she's not drawing, Caitlyn is probably at the local library with her husband, finding a new book and stopping to say hello to the library's tortoises.

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