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OverviewWhen their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being. For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows. The new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classification system and the Functional Mobility System, are described and explained. And a number of emerging therapies-including marijuana oil, cord blood transfusion, deep brain stimulation, epilepsy surgery, and growing spinal rods-are explored. Intended for parents, grandparents, teachers, therapists, and others who care for and about people with cerebral palsy and cerebral palsy-like conditions, this is an essential and compassionate guide. Key Features: * Detailed descriptions of specific patterns of involvement (hemiplegia, diplegia, quadriplegia)* Explanations of the medical and psychosocial implications of CP* Photographs and drawings that complement the text* Practical advice about caregiving, from nutrition to mobility * An illustrated encyclopedia that defines and describes terms, diagnoses, medical and surgical procedures, and orthopedic and other assistive devices* Lists of resources and recommended reading, which include a number of online sources Full Product DetailsAuthor: Freeman Miller (Division of Orthopedics) , Steven J. Bachrach (Division of General Pediatrics)Publisher: Johns Hopkins University Press Imprint: Johns Hopkins University Press Edition: third edition Dimensions: Width: 17.80cm , Height: 3.90cm , Length: 25.40cm Weight: 1.021kg ISBN: 9781421422152ISBN 10: 1421422158 Pages: 496 Publication Date: 25 July 2017 Audience: General/trade , Professional and scholarly , General , Professional & Vocational Format: Hardback Publisher's Status: Active Availability: Out of stock ![]() The supplier is temporarily out of stock of this item. It will be ordered for you on backorder and shipped when it becomes available. Table of ContentsForeword, by Joan Lenett Whinston Preface Acknowledgments PART I. 1. What Is Cerebral Palsy? 2. An Overview of Early Child Development 3. Medical Problems Associated with Cerebral Palsy 4. Intellectual, Psychological, and Social Development 5. Hemiplegia 6. Diplegia 7. Quadriplegia 8. The Adult with Cerebral Palsy 9. How the Health Care System Works 10. Financing Care for the Child with Cerebral Palsy 11. Navigating the Educational System 12. Being an Advocate for Your Child PART II. Taking Care of Yourself When You Care for Others Protecting the Caregiver's Back: Basic Body Mechanics Making Things Easier for You and Your Child Choosing Appropriate Seating Choosing and Using Car Seats About Wheelchair Maintenance Pressure Management Awareness Choosing a Stander About Walkers and Gait Trainers About Braces Choosing the Correct Shoes Increasing Independence with Service Dogs Managing the System Working with a Case Manager Letters of Medical Necessity Occupations for Adults with Cerebral Palsy About Hospitalization Keeping Medical History Records Life Planning Process About Casts Using Nutritional Boosters Managing Tube Feedings Providing Oral Care Toilet Training Your Child Giving an Enema Giving Rectal Medications or Suppositories Suctioning Techniques PART III. From Achilles Tendon Lengthening to Vocational Rehabilitation Resources IndexReviewsA 'must' for any family struggling with CP care... The wealth of details are organized logically and parents will find it easy to navigate, making it an item of choice above others. --Bookwatch This book is well structured, easy to read, and gives answers to all questions related to the management of children and adults with CP. --European Journal of Pediatrics Addresses the many complexities and uncertainties related to this diagnosis. At the same time, it provides the information parents, grandparents, caregivers, and health professionals need--everything from medical, educational, and psychosocial implications to wheelchair maintenance and dental care. --Exceptional Parent Addresses the many complexities and uncertainties related to this diagnosis. At the same time, it provides the information parents, grandparents, caregivers, and health professionals need--everything from medical, educational, and psychosocial implications to wheelchair maintenance and dental care. --Exceptional Parent A 'must' for any family struggling with CP care... The wealth of details are organized logically and parents will find it easy to navigate, making it an item of choice above others. --Bookwatch This book is well structured, easy to read, and gives answers to all questions related to the management of children and adults with CP. --European Journal of Pediatrics Author InformationFreeman Miller, MD, and Steven J. Bachrach, MD, are the co-directors of the Cerebral Palsy Program at Nemours / Alfred I. duPont Hospital for Children in Wilmington, Delaware. Dr. Miller is an assistant professor of orthopaedic surgery at Thomas Jefferson University's Sidney Kimmel School of Medicine in Philadelphia and an affiliated associate professor of kinesiology and mechanical engineering at the University of Delaware. Dr. Bachrach is a professor of pediatrics at the Sidney Kimmel School of Medicine and the medical director at Philadelphia's HMS School for Children with Cerebral Palsy. Tab Content 6Author Website:Countries AvailableAll regions |