Overview

Despite the large U.S. investment in health science, and the vast and growing body of peer-reviewed research findings it has produced, a compelling body of evidence suggests that research too often has been slow, inefficient, and fallen short of desired impacts on health. A key question is how research might be changed to be more innovative, less wasteful, and more responsive to unmet health needs.    One emerging response within clinical and translational science is to advance an approach that attempts to close the gap between research scientists and key stakeholders; the individuals and groups responsible for or affected by health-related decisions. Broadly engaged team science promises to support this aim by transforming the gold standard, multi-disciplinary team science, to include key stakeholders in activities across the research spectrum. These new roles and responsibilities range from generating research questions to implementing research projects,to aiding in the translation of discoveries from the laboratory to the community. A transition to broadly engaged team science reflects the idea that inclusivity and a diversity of perspectives are necessary to achieving progress in addressing complex health issues while representing a new benchmark for ethical research practice.    This is one of the first collections of papers describing how clinical and translational science researchers are defining and implementing new research practices, and the successes and challenges involved. This book represents a first and critical step towards organizing knowledge of broadly engaged team science and advancing the development of evidence-based practices. Written in an accessible style, this book is intended to highlight the breadth of broadly engaged team science within one community, motivate researchers and stakeholders to build inclusive teams, bring rigor to often informal stakeholder engagement research practices and encourage people to think more broadly about the development of scientific knowledge. It includes examples of multi-disciplinary, broadly engaged team science projects, the perspectives of academic leaders about the changes needed to encourage scientists to conduct broadly engaged team science, and a resource directory.

Full Product Details

Author:   Debra Lerner ,  Marisha E. Palm ,  Thomas W. Concannon
Publisher:   Springer Nature Switzerland AG
Imprint:   Springer Nature Switzerland AG
Edition:   1st ed. 2022
Weight:   0.427kg
ISBN:  

9783030830304

ISBN 10:   3030830306
Pages:   260
Publication Date:   01 March 2023
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   Manufactured on demand  
We will order this item for you from a manufactured on demand supplier.

Table of Contents

1. Introduction Alice Rushforth and Harry Selker Part I Transforming Research with Broad Engagement 2. The Transformative Power of Broadly Engaged Team Science: A Mother’s Quest to Understand PXE Sharon Terry 3. Broadly Engaged Team Science in Neonatal Research Jonathan M. Davis 4. Patient Advocates in Cancer Care: A Rich Tradition and Evolving Role Susan K. Parsons 5. National Kidney Foundation Patient Network  Silvia Ferrè, Silvia Titan and Lesley A. Inker 6. Broadly Engaged Team Science Comes to Life in a Design Lab Marisha E. Palm, Harry Selker, Theodora Cohen, Kenneth Kaitin, Kay Larholt, Mark Trusheim and Gigi Hirsch 7. Tufts Center for the Study of Drug Development Employs Broadly Engaged Team Science to Explore the Challenges of Pharmaceutical Research and DevelopmentKenneth I. Kaitin and Kenneth Getz Part II. Integrating Communities and Stakeholders into Broadly Engaged Team Science 8. Social Movements and Stakeholder Engagement  Peter Levine 9. A Basic Scientist’s Journey: Engaging Public Stakeholders Through Civic Science Jonathan Garlick 10. Lessons in Public Involvement from Across the Pond Marisha E. Palm, Tina Coldham and David Evans 11. Leveling the Playing Field for Community Stakeholders: Examining Practices to Improve Engagement and Address Power Dynamics Sara Folta, Linda B. Hudson, Beverly Cohen and Apolo Cátala 12. A Theory of Stakeholder-driven Community Diffusion Erin Hennessy and Christina Economos 13. Monitoring and Evaluation of Stakeholder Engagement in Health Research Thomas W. Concannon and Marisha E. Palm Part III. Applying Broadly Engaged Team Science: Case Studies 14. Insiders and Outsiders: A Case Study of Fostering Research Partnerships between Academic Health Centers and Corrections Institutions Alysse G. Wurcel, Julia Zubiago, Deirdre J. Burke, Karen M. Freund, Stephenie Lemon, Curt Beckwith, John B. Wong, Amy LeClair and Thomas W. Concannon 15. Responding to the Community: HOPE (Healthy Outcomes from Positive Experiences) Robert Sege, Dina Burstein and Chloe Yang 16. Students as Key Collaborators in Tackling Early Stage Research Ideas Alissa Dangel and Mallory Whalen 17. Engaging Stakeholders to Decrease Study Start-up Delays Denise H. Daudelin, Alyssa Cabrera, Alicea Riley and Jaime Chisholm 18. Health Literacy and Broadly Engaged Team Science: How One Study Team Used Plain Language Principles to Share Findings with Affected Communities Sabrina Kurtz-Rossi, Doug Brugge and Sylvia Baedorf Kassis 19. Utilizing Patient Navigators to Promote Equitable and Accountable Research MingqianLin, Douglas Hackenyos, Fengqing Wang, Nicole Savidge, Angela Wimmer, Antonia Maloney, Susan Mohebbi, Michele Guard and Susan K. Parsons 20. Asian American Research in the Post-Atlanta Era: Driving Community-engaged Research That Is More Meaningful, Responsive, and Actionable for Local CommunitiesCarolyn Leung Rubin, Ben Hires, Dawn Sauma and Yoyo Yau 21. Stakeholder Engagement in Predictive Model Development for Clinical Decision Support Denise H. Daudelin Part IV. Creating an Institutional Environment of Support for Broadly Engaged Team Science 22. Research Administration Practices for Proposal Development and Post-Award Management of Stakeholders and Community Participants Carol Seidel 23. Starting Off Right: Supporting Community Involvement in the Evaluation of Research Proposals Robert Sege and Marguerite Fenwood 24. Role of Broadly Engaged Team Science in the Inclusion of Minority Populations as Research Participants and in All Roles on Research Teams Pamela B. Davis and Harry P. Selker 25. Rewarding Team Science in Tenure and Promotion Practices: An Operational Imperative for the Academic Research Enterprise of the 21st Century Augusta Rohrbach and Caroline Attardo Genco Epilogue Debra Lerner, Thomas W. Concannon and Marisha E. Palm Resource Guide

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Author Information

Debra Lerner, MSc, PhD, is Associate Director of Organizational Impact for Tufts Clinical and Translational Science Institute (CTSI), Director and founder of the Program on Health, Work and Productivity at Tufts Medical Center, and Professor in the Departments of Medicine and Psychiatry of Tufts School of Medicine and Tufts Graduate School of Biomedical Science. She has dedicated her career to reducing the human and economic burden of illness and disability and translating research results into evidence-based workplace policies and practices that enable all adults to remain productive throughout their lives. She is a national thought leader on health and work productivity improvement as well as workplace mental health. She is an expert survey researcher whose questionnaires, including the Work Limitations Questionnaire, are used worldwide. Dr. Lerner has authored over 80 peer reviewed publications, is the recipient of numerous research grants and contracts, and received the prestigious Mark Dundon Research Award from the Health Enhancement Research Organization (HERO) and President’s Award from the Institute of Health and Productivity Management (IHPM). She has consulted on employee health and productivity improvement for many organizations, including the US Veterans Benefits Administration, Social Security Administration Disability Programs, the Assistant Secretary’s Office for Planning and Evaluation within the Department of Health and Human Services, One Mind, the World Economic Forum, and many private-sector health insurers and employers. Dr. Lerner serves on the board of directors of The Health Project, which awards the prestigious C. Everett Koop award to employers that have demonstrated excellence in employee health promotion and disease prevention and is Board Chair of the Center for Workforce Health and Performance.

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