Overview

Both a memoir and a medical study, this unique work explores the extensive and tragic reach of craniosynostosis, the premature fusing of the cranial sutures in infants. The author--born with craniosynostosis in 1975--documents his and his family's struggles, weaving his story into a broader view of this birth defect. Included are interviews with respected craniofacial surgeons, neurosurgeons and pediatric anesthesiologists, an explanation of the major types of craniosynostosis, and a summary of the modern medical history of cranial sutures, as well as ancient treatments dating to the time of Hippocrates. The experiences of 11 American families affected by craniosynostosis are chronicled, demonstrating the uniqueness of each case and each treatment. Their stories illustrate the surgical techniques now being used to release cranial sutures, allowing the brain to grow naturally--though not every story ends this way.

Full Product Details

Author:   Kase D. Johnstun
Publisher:   McFarland & Co Inc
Imprint:   McFarland & Co Inc
Dimensions:   Width: 15.20cm , Height: 1.20cm , Length: 22.90cm
Weight:   0.336kg
ISBN:  

9780786475698

ISBN 10:   0786475692
Pages:   244
Publication Date:   13 February 2015
Recommended Age:   From 18 years
Audience:   General/trade ,  General
Format:   Paperback
Publisher's Status:   Active
Availability:   Available To Order  
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Table of Contents

Table of Contents Acknowledgments Foreword by Katie Mae Garner Preface Part One: Beginnings 1975 Out of the Chutes Kinship Part Two: The Rearview Mirror Sutures The Fever—Inside Anesthesia Part Three: From Here to There and Back (Lambdoid Synostosis) The Noose The Plateau Part Four: The Crown (Coronal Synostosis) Intruder Loosen Part Five: The Bridge (Metopic Synostosis) The Ridge The Sound The East River Part Six: Fault Lines (Sagittal Synostosis) The Plains The Apparatus (Endoscopy and Helmet Therapy) Scarred Detritus The Corridor The Great Salt Lake Part Seven: The Mother, the Advocate and the Word “Cosmetic” The Dream No Montage Scars The Shave Release Bibliography Index

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Author Information

Kase D. Johnstun is an award winning essayist whose work has appeared nationally and internationally. He lives in Ogden, Utah.

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