Overview

Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles. The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex—and often tense—relationship of parents to disability rights organizations and activism.  The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.

Full Product Details

Author:   Allison C. Carey ,  Pamela Block ,  Richard Scotch
Publisher:   Temple University Press,U.S.
Imprint:   Temple University Press,U.S.
Dimensions:   Width: 15.20cm , Height: 2.40cm , Length: 22.90cm
Weight:   0.481kg
ISBN:  

9781439916339

ISBN 10:   1439916330
Pages:   350
Publication Date:   26 June 2020
Audience:   Professional and scholarly ,  Professional & Vocational
Format:   Paperback
Publisher's Status:   Active
Availability:   In Print  
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Table of Contents

TABLE OF CONTENTS Acknowledgements 1 Chapter 1 Introduction 4 Part I: Disability Activist Communities 42 Chapter 2 Intellectual Disability and Parent Activism 43 Chapter 3 Psychiatric Diagnosis, Disability, and Parent Activism                                                                                     82 Chapter 4 Autistic Identity and Parent Activism 114 Chapter 5 Physical Disability and Parent Activism 147 Part II: Cross-Disability Analysis 179 Chapter 6 Timing: Factors Affecting the Emergence of Parent Led Organizations 180 Chapter 7 Frames and Positions within the Field of Disability Activism  203 Chapter 8 Social Movement Strategies and Public Policy 248 Chapter 9 Narratives of Rights 270 Chapter 10 Parents, Children, and Advocacy across Life Transitions                                                                                     316 Chapter 11 Conclusion 340 Appendix A: A Note on Methods 358 Endnotes 360 Bibliography 386

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Author Information

Allison C. Carey is a Professor in the Department of Sociology and Anthropology at Shippensburg University. She is the author of On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth-Century America (Temple) and co-editor of Disability Incarcerated: Disability and Imprisonment in the United States and Canada and of Disability and Community. Pamela Block is a Professor of Anthropology at Western University. She is co-editor of Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability. Richard K. Scotch is Professor of Sociology and Public Policy at the University of Texas, Dallas. He is the author of From Good Will to Civil Rights: Transforming Federal Disability Policy (Temple), co-author of Disability Protests: Contentious Politics, 1970–1999, and co-editor of Disability and Community.

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