Overview

Adam appeared to be a healthy, happy little boy at the time his baby sister was born. He and his sister Chelsea were thrilled the day they welcomed Amanda into their family. They saw her through the nursery window and briefly in their mom's hospital room. But soon after, she was whisked away to the local children's hospital as doctors tried to find out what was causing her enlarged liver and spleen. Two months later, Amanda was flown to Dallas for a liver transplant. Adam and Chelsea would not see their baby sister again until she was four and a half months old. When Adam began experiencing symptoms of an illness with which his baby sister was diagnosed, his parents had him tested. Sadly, they were told that Adam had Niemann-Pick type C, a rare, incurable disease. Two of their three children would not live into adulthood. Although Adam lost his ability to speak at a young age, Missy's hope is to tell her son's story the way she imagines he would want it to be told. Adam's Voice is mostly written through Adam's eyes, allowing the reader to experience what he was going through as the years unfolded. His mom, Missy, fills in the gaps, explaining the medical diagnoses and terminology that a small child could not.

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