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On one level, Benjamin Bede Galvin lived his own unique and special life. As his father, I coped (or did not cope) as best I could with being his father, and my story is also an idiosyncratic one. Yet on another level, we are both representative of concentration points of our times. Benjamin was a textbook case of a boy, and then a young man, with Duchenne muscular dystrophy, and what it means to live and die from this disease, in Australia, in suburban Adelaide, at the end of the twentieth century and the beginning of the twenty-first. And I am his ageing baby boomer father, handed a script I cannot change very much, from the moment of diagnosis when he was a year old, to the present moment, when I cannot imagine any future day in my life when I will not feel some pain of his loss.

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9781760418861

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Michael Galvin was born in Sydney, and completed his tertiary education with a Masters degree from Sydney University, and a doctorate from Macquarie. He worked at the University of South Australia from 1990 to 2012, where he was Head of the School of Communication and Information Studies for ten years. His family involvement in the disability community resulted in several years on the Board of the South Australian Muscular Dystrophy Association, including three years as President. He presently lives in Melbourne, where he teaches Australian literature part-time.

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