Rare Like Us: From Losing My Dad to Finding Myself in a Family Plagued By Genetic Disease

Author:   Taylor Kane
Publisher:   BookBaby
ISBN:  

9781543978810


Pages:   208
Publication Date:   02 September 2019
Format:   Paperback
Availability:   Not yet available   Availability explained
This item is yet to be released. You can pre-order this item and we will dispatch it to you upon its release.

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Rare Like Us: From Losing My Dad to Finding Myself in a Family Plagued By Genetic Disease


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Author:   Taylor Kane
Publisher:   BookBaby
Imprint:   BookBaby
Dimensions:   Width: 0.60cm , Height: 15.20cm , Length: 22.80cm
ISBN:  

9781543978810


ISBN 10:   1543978819
Pages:   208
Publication Date:   02 September 2019
Audience:   General/trade ,  General
Format:   Paperback
Publisher's Status:   Active
Availability:   Not yet available   Availability explained
This item is yet to be released. You can pre-order this item and we will dispatch it to you upon its release.

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Taylor Kane is the founder and president of the non-profit, Remember the Girls, an international support and advocacy organization which unites, educates and empowers female carriers of rare genetic disorders--a group which is underrepresented and often overlooked by the medical profession. Taylor learned that she, herself, was a carrier of the rare genetic disease Adrenoleukodystrophy (ALD) after her father died from the disease when she was five years old and has been a fierce advocate ever since, working to raise awareness of the disease as well as funds for ALD research. In 2013, she successfully lobbied the New Jersey legislature and governor to enact a law requiring the screening of newborns for ALD, as the disease can only be cured if treated before symptoms develop. Taylor is an accomplished speaker, author, and an award-winning activist. She is currently a senior at The George Washington University in Washington, D.C. where she is pursuing a bachelor's degree in Political Communication with a minor in Women's Studies. Taylor calls Mount Laurel, New Jersey home. In her free time she enjoys reading, watching documentaries, and relaxing with her dog, Jynx.

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