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OverviewA Parents'Guide to CFIDS is the only complete book for parents of children with CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Written in a friendly, personal manner by parents for parents, A Parent?s Guide to CFIDS combines medical, parental, and personal experiences designed to minimize the negative effects of socialization and education on children with CFIDS. This guide will assist you in understanding CFIDS, also known as Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME), one of the most complicated illnesses in medical history. You will learn how to help your child overcome the major academic challenges of CFIDS and the socialization issues inflicted by being cut off from friends and peers at a critical stage of development. Some of the topics covered in A Parent?s Guide to CFIDS include: options for academic planning how to be your child?s number one advocate balancing your family life when you have a child with CFIDS helping your CFIDS child develop socially with support groups young people with CFIDS speak out about their experiences deciding how much physical activity your child can handle letters to the school from the physician 75 tips for coping with inflicted children, from pain to schoolworkA Parents'Guide to CFIDS is written by a doctor, educators, and parents of children with CFIDS, and guides parents and educators in understanding, coping with, and helping a child with CFIDS live a better life. This roadmap to recovery covers everything from medical terms and doctor visits to assisting with schoolwork and focusing on normal development to improve your child's life. Full Product DetailsAuthor: David S Bell , Bonnie Floyd , Jean Pollard , Mary RobinsonPublisher: Taylor & Francis Inc Imprint: Haworth Press Inc Edition: Revised ed. Dimensions: Width: 15.30cm , Height: 1.20cm , Length: 21.30cm Weight: 0.268kg ISBN: 9780789007117ISBN 10: 0789007118 Pages: 161 Publication Date: 24 February 1999 Audience: General/trade , General Format: Paperback Publisher's Status: Out of Stock Indefinitely Availability: Awaiting stock  Table of ContentsContentsAbout the Authors Acknowledgments Introduction Personal Issues Surrounding CFIDS Chapter 1. How Do You Know If Your Child Has CFIDS? The Symptoms Differences Between Children and Adults with CFIDS Inaccurate Diagnoses Chapter 2. The Misunderstood Illness Chapter 3. How to Balance Your Family Life When You Have a Child with CFIDS The YPWC The Special Problems of Being a Brother or Sister of a YPWC Your Changing Role As a Parent of a YPWC Chapter 4. How to Be Your Child?s #1 Advocate How to Have a Good Relationship with Your Child?s Doctor How to Be Your Child?s Advocate at School Further Consideration Chapter 5. Helping Your YPWC Develop Socially The Health Child?s Socialization Social Issues for the YPWC Chapter 6. YPWCs and Parents Speak About Developmental Stages of Coping with CFIDS Obtaining a Diagnosis Coming to Terms with CFIDS Denial Losses and Grieving Depression Anger Fighting the Diagnosis Reaching Out and Sharing Identity Formation Acceptance Educational Issues Surrounding CFIDS Chapter 7. Deciding How Much Your Child Can Do How Many Hours of School Can Your YPWC Manage? Scheduling Your YPWC?s Daytime Hours Chapter 8. Discussing Some of Your Child?s Educational Options Working with the Staff on a Day-to-Day Basis Become Aware of Laws Pertaining to Education Chapter 9. Evaluating Intellectual Abilities Standardized Tests Preparing for Testing Interpreting Performance Epilogue: Look How Far We?ve Come Appendixes Appendix A: Chronic Fatigue Immune Dysfunction (CFIDS) Health Questionnaire for School Personnel Appendix B: Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) Organizations and National Support Groups Appendix C: On-Line Resources Appendix D: Letters to the School from the Physician Appendix E: Educational Resources Appendix F: List of Abbreviations/Acronyms Appendix G: Seventy-Five Tips for Coping with CFIDS in Children--From Pain to Schoolwork Appendix H: Sample 504 Plans and IEP Appendix I: Educational Citations IndexReviewsAuthor InformationTab Content 6Author Website:Countries AvailableAll regions |
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